1. plastic surgeon
2. ENT
3. Speech Therapist
4. Dentist
5. Orthodontist
6. regular pediatrician
7. Genealogy councilor (for parents and for him when he's older)
all of these people work with his cleft and all of them are fantastic. About 6 months ago we got a letter saying that Az. was cutting the budget a bit and that we would start having to pay co-pays just like a normal doctor. Which is fine, i don't like the place because it's free, i would probably pay more then a regular doc. visit because of how awesome it is. (btw, not everyone has to pay co-pays, just the "rich" people...yeah i qualify as rich...dumb) So we had a couple doctors appointments, paid co-pays and then some, and today i get a letter saying that State funding has completely been suspended for CRS and we will be dis-enrolled as of 12/1/09. But people who still qualify for welfare can still go, for completely free. Now i don't care about the people who are on welfare, they obviously need it, just like i did before, but i was paying anyways why am i now not allowed to go?? Ty still needs to have so much work done and i am so upset that i have to go get different doctors, and that all of the stuff wont be coordinated. We will probably still go to his ENT but it is literally impossible to go to his plastic surgeon because he doesn't accept private insurance. I feel like we have to start all over again and it's sad that the state are cutting the wrong things. I know they cut daycare funding, foster care funding, health care, and my mom who works for the state took a big pay-cut too. Those are all really important things and i feel like they are being stupid.
I guess i just feel like we had a plan to take care of everything until he was 21 and now we dont have that option and i am kind of scared to take him anywhere else, i just want everything to be fixed for him.